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Klub nemocných cystickou fibrózou

The perspiration of those suffering from Cystic Fibrosis has a considerably higher salt content which is why patients are referred to in layman’s terms as “SALTY CHILDREN”. Cystic Fibrosis (CF) is a genetically acquired incurable disease which seriously affects the digestive and respiratory system. It is characterised by the formation of abnormally thick phlegm which remains in the respiratory tract and pancreas. Cystic Fibrosis is also accompanied by other complications – diabetes, liver cirrhosis, osteoporosis, male infertility, etc. Roughly one half of those currently affected by the disease live until the age of 32. Patients are required to follow a demanding treatment programme each day. The Cystic Fibrosis Club was set up in 1992 and is the only organisation of its kind in the Czech Republic to bring together those affected by the disease.

You can find more information on www.cfklub.cz / www.slanedeti.cz.

Contact: Lenka Eislerová, reditel@cfklub.cz , tel: 257 211 929, 773 586 325.

Account No.: 1921101329 / 0800


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